I am a family member, carer or kin – How can I get involved?

You can share your experience online or take part in an interview.

You can use the information and consent form to decide if you want to get involved. Consent means agreeing to get involved.

There are 2 ways you can get involved:

  1. Use the ‘Share your experience’ online form

    • you can do this at a time that suits you
    • you can take the time you need to complete the form
    • you can submit text, audio, video or images
    • you won’t receive a payment for doing this.

    Complete the ‘Share your experience’ online form here.

    Learn more about the questions in the online form in these documents:

  2. Take part in a group interview

    • this will be online for about 2 hours at a set time
    • you can bring a support person with you
    • we can also provide supports such as an Auslan interpreter
    • we will provide a $145 pre-paid credit card for your time.

Find out more about having your time and work recognised in Fact Sheet 4 of the ‘Toolkit for engaging people with disability in evaluation’.

To let us know you are interested please use the registration form for group interviews.

We need up to 90 people to take part in the group interviews for family members, carers and kin.

  • If lots of people tell us that they want to take part in a group interview, we will choose people from different states and territories.
  • If you can’t take part in a group interview, you can still use the ‘Share your experience’ online form.

Adjustments and supports for focus groups

We can support different communication needs in consultations, and arrange accommodations so you can take part in a way that works for you.

This may include:

  • Auslan interprers
  • Captioning or live transcription
  • plain English or Easy Read information
  • support to use communication devices
  • support to take part online, by phone, or with a support person.

What if I need support?

Some people may find talking about their experiences or hearing about other’s experiences upsetting or distressing.

There are also places you can make a complaint about service or report abuse.

You can find a range of information and support services on our website.

A banner depicting people with disability - a mother with a young child with Down Syndrome,
                            a young woman in a wheelchair wearing a black shirt and smiling, and two men looking at some shelves -
                            one is a young man with Down Syndrome who is carefully placing something down on one shelf.